Tomorrow morning (Monday) we give Grace what should hopefully be her final ACTH injection. She will have had a total of 44 injections over a period of 5 1/2 weeks of treatment. We also meet with the neurologist tomorrow afternoon to get his take on where to go from here.
Grace has now been seizure-free for 4 weeks and 2 days now, after experiencing seizures over a period of 3 weeks initially. She continues to have her personality and energy back, but also continues to struggle with sleeping soundly through the night. She does pretty good up until her second feeding of the night around 4-4:30 a.m. and then needs TLC to carry her through the rest of the night.
We are incredibly blessed that Grace responded so well to the treatment and we know it's because of Jesus.
We'll post about the outcome of tomorrow's appointment.
-Derek
praying it goes well. Lets hope she's past it all and can get back to normal life. So glad she's responded so well to her treatments. By the grace of God! I think she was aptly named!
ReplyDeleteWow, such an improvement - I love hearing updates on this blog. Praying for today's appointment and look forward to hearing the next update!
ReplyDeletePraying for you guys and about your doctor's appointment! Hugs being sent your way. :)
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