Requesting prayer

Thank you for continuing to keep up with our blog about Grace. Friday will be 8 weeks seizure-free, praise the Lord and Grace is still very happy and content. Those are the blessings. We would like to request prayer for the following challenges:

Nighttime sleep: Sleep has gotten really bad again and all three of us are very exhausted. Michelle is feeling extremely run down and I'm starting to get that way too. Grace is just very restless throughout the night needing comfort, a change of positions, etc. Sometimes she's not even fully awake, but Michelle and I wake up hearing her on the monitor making moaning or grunting or fussing sounds. For example last night she needed intervention about every hour so none of us are getting any good blocks of sleep.

We think the latest sleep issues are related to recent cut back of her Klonopin, which is the medication she started a week before the steroid, which relaxes the brain waves and made her incredibly sleepy and lethargic at first. One of the side effects of withdrawal is insomnia and her body probably got dependent on the medicine for sleeping.

Rolling over: Please pray that Grace will master the art of rolling over both ways--including in her crib during sleep time. During the day if you put her on her stomach she'll roll onto her back in a few seconds. She rarely rolls from back to stomach though. During the night in her crib, she seems unable to roll over either way. When she gets uncomfortable and tries to roll over, she gets distressed so we have to go in and manually flip her to help her change positions. She should be able to roll both ways at this stage but up until last week her mattress was propped up at a 45 degree angle and she slept between a stabilizer, all because of her reflux. She's probably also a little behind in this area because of the effects of the seizures and the medications as well.

Daytime sleep: Daytime naps have almost disappeared completely meaning no rest for Grace or Michelle and no break for Michelle during the day. Grace was sleeping 3-4 hours total during the day but the last week and a half it's only been about 1-1.5 hours total sleep during the day. The decline in daytime sleeping also coincided with the reduction in her Klonopin.

Thank you guys. We really appreciate your prayers and please know that they work, big time.

Derek