It's been 10 days now with no seizures, for which we are very encouraged. We started the steroid weaning process last Thursday and it seems Grace has been feeling a little more like herself yesterday and today. Still far from her true, bubbly, energetic self, but we saw some smiles yesterday (the first I'd seen in a week) and a lot of smiles today, even a giggle. We were able to play with her, doing silly little things she could anticipate that would make her smile. She's still really tired and doesn't have near the strength and mobility that she did before treatment, but we know that will come back in time.
Also, Grace's blood pressure was back to a safe level today, which is a huge answer to prayer. Based on that, the neurologist suggested continuing on the original 7-week treatment plan, rather than expediting the weaning process like he suggested the other day, which would have shortened it by 2 weeks. So we have about 30 days to go now.
Next Wednesday is a significant day for little Gracie as she has her first EEG (brainwave scan) since the hospital stay 4 weeks ago. I would be very surprised if they're not dramatically improved. We serve a mighty God Who is able to work mighty miracles and we continue to look to Him for our hope and peace. We are not without moments of fear and doubt, but Jesus pulls us through those back to a place of trusting in Him.
Thank you for your continued prayers and support!
-Derek
Blessed be the God and Father of our Lord Jesus Christ, the Father of sympathy (pity and mercy) and the God [Who is the Source] of every comfort (consolation and encouragement) II Corinthians 1:3
ReplyDeleteAnd God is able to make all grace abound toward you, that you, always having all sufficiency in all things, may have an abundance for every good work. II Corinthians 9:8
~Prayin' for Grace.
~You don't know me but God has put your little one on my heart.
Praying all goes well with the EEG and that Chelle and you will be granted peace that passes all understanding. So happy to hear little Grace is "returning" to you guys.
ReplyDeleteMichelle,
ReplyDeleteYou may not remember me; I knew you from old ATI/Children's Seminar days :). You may know my sister, Rebekah Johnson, now Rebekah Schlender or Justin Pepples (he's dating my best friend :).
I just wanted to let you know that I am praying for you, Derek, and your precious little Grace. May He grant her complete healing and grace, patience, and joy for both of you. What a special story you will have to share of God's intimate love and amazing power through this time! I wanted to share with you a verse that has been very special to me. I hope it encourages you too.
“Wait and hope for and expect the Lord; be brave and of good courage, and let your heart be stout and enduring. Yes, wait and hope for and expect the Lord.” Psalms 27:14 amp.
Rachael Johnson
Lord please give sweet Grace a peaceful night, may she rest and feel refreshed. Please continue to give Derek and Michelle an amazing amount of strength. Bless them as parents to this sweet baby, may this season of time pass soon for all of them.
ReplyDeleteJennifer Lynch