Today we lowered the ACTH dosage to .20 of a cc, rather than .25. We're still doing one injection every other day as we will until treatment is over but will reduce the dosage 2 more times in the process.
Grace is still seeming more like herself and actually seems even happier and more smiley and vocal than before all this started, even making some new vocal sounds. With Grace doing so much better it's hard to keep her just around the house although we definitely need to for her immune system. It's very tempting to want to start plugging back into normal life with going out to stores, the pool, church, etc., but that will have to wait for a couple of months after the injections are over.
She had developed a tremor in her left foot a few weeks ago and that seems to be gone as well. It's neat to see how God is healing Grace so thoroughly. When He does something, He does it completely, not leaving loose ends.
We're still battling reflux and there was rough patch for a while last night, as we were up with Grace for a couple of hours in the wee hours of the morning.
The doctors gave Grace a 20% or less chance of getting well and living a normal life. However, my Bible tells me that 100% of the people that came to Jesus for healing were indeed healed. We've had opportunities to share our faith with a good number of the medical staff we've been working with--people we never would have even met if all this hadn't happened. Reminds me of what Joseph said in Genesis when he said "What others (in this case Satan) intend for evil, God uses for good." That's a bit of a paraphrase of course.
Grace has her EEG (brainscan) this Wednesday and we meet with the neurologist for a general checking-in on Friday. He might possibly have the EEG results by then, but more likely we'll have them early next week.
-Derek
P.S. When all this is over, I'm taking my girls to the beach to celebrate and get some R&R!
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