Miserability

When the doctor was giving us the rundown of the possible side effects of the ACTH steroid Grace is taking, one of them was "irritability." I wouldn't say that irritability has been the case with Grace, but something more like "miserability." Ever since we started giving her the shots, our little darling has just seemed to be absolutely miserable. The happy, bubbly, easily amused little girl that is our daughter has been replaced with an exhausted and fussy baby. Grace is so tired that it's hard for her to even have the energy to eat. What's difficult is that even though she is so tired, she has a really hard time settling down to take naps.

The moments that we're able to coax even a half smile out of her are precious and they give us hope for getting our daughter back one day. I miss her. Grace is still a delight to our hearts and we'll take her any way we can get her. It makes our hearts break to see her suffering, but we know that Jesus is wrapping His arms around her and giving her comfort we can't even see.

Some verses that God has given us at the beginning of this journey were Psalm 27:13-14:
"I would have lost heart unless I had believed I would see the goodness of the Lord in the land of the living. Wait on the Lord, be of good courage, and He will strengthen your heart. Wait, I say, on the Lord."
A friend messaged me this morning with those same verses. God is so good, loving, and kind to us. He has taken so many measures to encourage us over the past couple of weeks. We are seeing the goodness of God in the land of the living.

-Michelle