Wednesday, August 11, 2010

Ups and downs

Today marks the 7th day of ACTH treatment and after tonight's injection we'll be half way through Phase 1. Overall, the number of spasms has decreased both in volume and intensity since starting ACTH, although for some reason yesterday she had the most spasms since the treatment began.

One of the side effects of the medication is a ravenous appetite, and man, that is an understatement! Grace is starving ALL the time, even 30 minutes after eating a big meal. Even though Grace is eating sweet potatoes and now formula to help supplement breast milk, this still means a lot more work for the nursing momma. My little girl is chunking up pretty fast and if this keeps up she should outweigh her daddy by the end of the week.
Here's Grace with her little buldging belly after one of her many meals.
Her little thighs are chunking up nicely. Mommy calls them delicious. Note the Hello Kitty band-aids from her shots that Grandmommy (Michelle's mom) got for her.

By way of prayer request, all 3 of us are pretty exhausted. Grace got up to eat 5 or 6 times (it gets kinda hazy) during the night last night, reminiscent of when she was a newborn. She's only lasting about 2 hours in-between meals.

Trusting and hoping in God's mercy for the journey,

Derek

4 comments:

  1. Maybe try to put some steak in a blender and give it to her? :)
    Continuing in prayer . . .

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  2. Aw, sleepless nights are *not* fun, praying for lots of rest for you guys. So impressed with your faith during this challenging time.

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  3. Jon, that's an AWESOME idea! Why didn't I think of that??
    -Michelle

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  4. Thanks Debi. There are lots of moments of fear and doubt as well (we just don't write about those). :0)

    Jon, I would, but the blender's broken.

    -Derek

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